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Quality of Life & Health Promotion for Persons with Intellectual Disability
Join The Arc for a special webinar featuring a team from APHA’s Disability Section Executive Council. Each speaker’s presentation will focus on a different topic relating to improving the quality of life for individuals living with an intellectual disability.
- Developing and evaluating family-level outcome measures for use in health and disability research
Stephen Firsing, PhD, is a faculty member in the College of Health Sciences at the University of Kentucky. His portion of the presentation will focus on the development of a new instrument to assess Family Quality of Life (FQOL) among caregivers of adults with traumatic brain injury using a mixed methods approach.
- Resource Capacity and Health Interventions: Implementing and Evaluating the WBH Curriculum in Montana
Holly Horan, MS is currently a doctoral student in Applied Medical Anthropology at Oregon State University. Her presentation will focus on the implementation and evaluation of the North Carolina Office on Disability and Health’s (NCODH) Women Be Healthy (WBH) curriculum in the rural state of Montana. This program was designed to encourage women with ID to become more active participants in their own health care, using three tactics: health education, anxiety reduction practices, and assertiveness and empowerment training.
- End-of-life Support Provided by Agency Staff for Adults with Intellectual and Developmental Disabilities
Theresa Moro, MS is currently finishing her doctorate at the School of Social Service Administration at the University of Chicago. Her presentation will discuss family member and agency staff experiences and the care received by adults with intellectual and developmental disabilities at the end of life. She will also discuss facilitators and barriers identified by family members and agency staff.
Early Access to Care – Reduce the average age at autism diagnosis and increase access to evidence-based early intervention services
Presenter: Lauren Elder, PhD
Lauren Elder, PhD, is the Assistant Director of Dissemination Science at Autism Speaks. She will be speaking on Autism Speaks’ Early Access to Care initiative, which seeks to reduce the average age of diagnosis and increase access to high-quality early intervention for all children on the autism spectrum. Children with Autism Spectrum Disorders can be diagnosed as early as two years of age, however the average age of diagnosis for autism in the United States remains stubbornly close to 5 years old and is even higher in some ethnic minority communities. Many families lack access to effective early intervention therapies regardless of early diagnosis. Join us to learn more about what Autism Speaks is doing improve access to care and ways your efforts combined with those of others in your community can help make a difference.
Wellness for Every Body: Training for Staff Who Support Individuals with Intellectual and Developmental Disabilities
- Carolyn Novak, M.S., R.D. – Community Health Specialist, Hennepin County Human Services and Public Health Department, Carolyn.Novak@co.hennepin.mn.us
- Dianne Blaydes, R.D., L.D. – Hennepin County Human Services and Public Health Department, Dianne.Blaydes@co.hennepin.mn.us
- Sarah Yates, JD – Program Analyst, Health and Disability Project, National Association of County and City Health Officials, email@example.com
Obesity is a public health epidemic, and the crisis is worse for people with disabilities. Adults with disabilities are 58 percent more likely to be obese than adults without disabilities, and children and adolescents with disabilities are 38 percent more likely to be obese than children without disabilities. To address this problem Hennepin County Human Services and Public Health Department developed Wellness for Every Body (WFEB), an online training program for direct service providers. WFEB uses an environmental approach that targets adult care homes for intervention and creates conditions that establish healthy living as the norm. The training is available 24/7 to teach the basics of nutrition, cooking, and physical activity so direct service providers can support active living and healthy practices in group homes and organizations serving people with I/DD. Due to its environmental approach, WFEB is applicable to other service provider settings, such as behavioral health, traumatic brain injury, and the elderly and people with physical disabilities. In 2013, Wellness for Every Body was recognized as a Promising Practice by the National Association of County and City Health Officials (NACCHO) Model and Promising Practices Program. Join NACCHO and Hennepin County Public Health to learn about this program and how you can use it in your jurisdiction.
JULY HEALTHMEET WEBINARS
Mental Health First Aid for Consumers, Families and Staff
Presenter: Dr. Lucy Esralew
Dr. Lucy Esralew is the Clinical Administrator of SCCAT and S-COPE, two statewide crisis response and clinical follow up programs funded by the NJ Division of Mental Health and Addiction Services through Trinitas Regional Medical Center. She will be giving an overview of an approach that is used to provide post-disaster support to individuals who have been exposed to manmade or natural disasters. This presentation will review how we can extend support in times of crisis to consumers, families and staff in order to return everyone exposed to trauma to a sense of safety, routine and normalcy as soon as possible. We will consider why individuals with IDD are particularly vulnerable following exposure to traumatic events. Guidelines will be offered to adapt this approach to the unique needs of individuals with IDD, their families and staff.
Health Disparities at the Intersection of Race, Ethnicity, and Disability
Health disparities impacting underserved racial and ethnic groups have long been recognized. More recently, disparities between people with and without disabilities have been identified. However, there has been little attention to the overlap between these two areas of research. The purpose of this webinar is discuss the concept of intersecting disparities and present findings from recent research on health and healthcare disparities experienced by people with disabilities in underserved racial and ethnic groups.
Willi Horner-Johnson, PhD
Research Assistant Professor
Institute on Development and Disability;
& Department of Public Health and Preventive Medicine,
Oregon Health & Science University
Glenn T Fujiura, PhD
Professor, Department of Disability and Human Development
Director of Graduate Studies, PhD Program in Rehabilitation Sciences
Editor in Chief, the journal Intellectual and Developmental Disabilities
College of Applied Health Sciences
University of Illinois at Chicago
Tawara D. Goode, MA
Director, National Center for Cultural Competence
& Associate Director, University Center for Excellence in Developmental Disabilities
Center for Child and Human Development
Georgetown University Medical Center, Department of Pediatrics
Please see our HealthMeet® Events page for a full calendar of all our upcoming HealthMeet® events at: www.thearc.org/healthmeet-events