Make sure to check out what’s coming up in June as well!

As always, we encourage you to share/post this information with others that may also be interested in learning more about these important topics.

Using Smart Technology and the Cloud to Make Telehealth Accessible for People with I/DD

Wednesday, May 22, 2:00-3:00pm EST
Presenter: David O’Hara, Ph.D.

People with cognitive limitations are six times more likely to have type 2 diabetes than the general population, as well as other chronic health problems. This is one example of an eminently preventable secondary health problem that has the potential to shift dramatically if supports for various lifestyle changes and more effective preventive health care are available.

Smart technology is changing the way we live our daily lives. In this presentation David O’Hara, Ph.D., Chief Operating Officer for the Westchester Institute for Human Development will describe specific pilot projects that use smart technologies and cloud-based applications to support more effective preventive health care for people with I/DD using a range of telehealth strategies. The new accessibility features of tablet touch screen technologies and smart phones provide tools for the design of interactive applications that can support the delivery of better preventive health care and chronic disease management. In particular they provide access to easily available cloud-based patient education materials and patient care experience surveys. Standard patient satisfaction surveys (such as the CAHPS medical home survey from AHRQ) will be made accessible for people with I/DD, which will also use cloud technology to capture and analyze data to help improve the system. They can also promote more frequent contact between the patient and their health care providers as well as allow the health care team to prompt and coach individuals in following good preventive health care behavior. Please join us to learn more about how effective use of these interactive applications can be a key strategy to help reduce the burden of chronic health issues among people with I/DD.

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The President’s Committee for People with Intellectual Disabilities Report and Recommendations for Managed Long-Term Services and Supports

Wednesday, May 29th from 2:00 – 3:00pm EST

  • Deborah Spitalnik (PCPID Citizen Member and Director of Elizabeth M. Boggs Center on Developmental Disabilities UCEDD)
  • Elizabeth Weintraub (PCPID Citizen Member and Self-Advocate Specialist at Association of University Centers on Disabilities)
  • Joe Caldwell (University of Illinois at Chicago & National Council on Aging)
  • Rachel Patterson (Policy Specialist at Association of University Centers on Disabilities)

Across the country, states are transforming the way they finance and deliver Medicaid long-term services and supports for individuals with disabilities. Many states are considering Managed Long-Term Services and Supports (MLTSS) programs as a way to improve coordination, promote systems change, and achieve savings. There are potential benefits, but also significant concerns for individuals with ID/DD. Stakeholder engagement from individuals with disabilities and their families and strong federal oversight are critical as states consider developing and implementing programs. The President’s Committee for People with Intellectual Disabilities (PCPID) convened experts on MLTSS and issued a report with numerous specific recommendations. This webinar will provide an overview of MLTSS, explain key issues for individuals with ID/DD, and highlight recommendations contained in the report.

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Quality of Life & Health Promotion for Persons with Intellectual Disability

Wednesday, June 12, 2013 – 2:00 – 3:00pm EST

Join The Arc for a special webinar featuring a team from APHA’s Disability Section Executive Council. Each speaker’s presentation will focus on a different topic relating to improving the quality of life for individuals living with an intellectual disability.

  • Developing and evaluating family-level outcome measures for use in health and disability research

    Stephen Firsing, PhD, is a faculty member in the College of Health Sciences at the University of Kentucky. His portion of the presentation will focus on the development of a new instrument to assess Family Quality of Life (FQOL) among caregivers of adults with traumatic brain injury using a mixed methods approach.

  • Resource Capacity and Health Interventions: Implementing and Evaluating the WBH Curriculum in Montana

    Holly Horan, MS is currently a doctoral student in Applied Medical Anthropology at Oregon State University. Her presentation will focus on the implementation and evaluation of the North Carolina Office on Disability and Health’s (NCODH) Women Be Healthy (WBH) curriculum in the rural state of Montana. This program was designed to encourage women with ID to become more active participants in their own health care, using three tactics: health education, anxiety reduction practices, and assertiveness and empowerment training.

  • End-of-life Support Provided by Agency Staff for Adults with Intellectual and Developmental Disabilities

    Theresa Moro, MS is currently finishing her doctorate at the School of Social Service Administration at the University of Chicago. Her presentation will discuss family member and agency staff experiences and the care received by adults with intellectual and developmental disabilities at the end of life. She will also discuss facilitators and barriers identified by family members and agency staff.

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Early Access to Care – Reduce the Average Age at Autism Diagnosis and Increase Access to Evidence-based Early Intervention Services.

Wednesday, June 19th from 2:00 – 3:00pm EST
Presenter: Lauren Elder, PhD

Autism Speaks Early Access to Care initiative seeks to reduce the average age of diagnosis and increase access to high-quality early intervention for all children on the autism spectrum. Lauren Elder, PhD, is the Assistant Director of Dissemination Science at Autism Speaks. She will reveal effective tools for screening children for autism risk as early as one year that can lead to diagnosing autism by age 2. Despite these tools, the average age of diagnosis for autism in the United States remains stubbornly close to 5 years old and is even higher in some ethnic minority communities. Many families lack access to effective early intervention therapies regardless of early diagnosis. Join us to learn more about improving this unacceptable situation and ways your efforts combined with those of others in your community can help make a difference.

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Wellness for Every Body: Training for Staff Who Support Individuals with Intellectual and Developmental Disabilities

Tuesday, June 25, 2013 – 2:00 – 3:00pm EST

  • Carolyn Novak, M.S., R.D. – Community Health Specialist, Hennepin County Human Services and Public Health Department
  • Dianne Blaydes, R.D., L.D. – Hennepin County Human Services and Public Health Department
  • Sarah Yates, JD – Program Analyst, Health and Disability Project, National Association of County and City Health Officials

Obesity is a public health epidemic, and the crisis is worse for people with disabilities. Adults with disabilities are 58 percent more likely to be obese than adults without disabilities, and children and adolescents with disabilities are 38 percent more likely to be obese than children without disabilities. To address this problem Hennepin County Human Services and Public Health Department developed Wellness for Every Body (WFEB), an online training program for direct service providers. WFEB uses an environmental approach that targets adult care homes for intervention and creates conditions that establish healthy living as the norm. The training is available 24/7 to teach the basics of nutrition, cooking, and physical activity so direct service providers can support active living and healthy practices in group homes and organizations serving people with I/DD. Due to its environmental approach, WFEB is applicable to other service provider settings, such as behavioral health, traumatic brain injury, and the elderly and people with physical disabilities. In 2013, Wellness for Every Body was recognized as a Promising Practice by the National Association of County and City Health Officials (NACCHO) Model and Promising Practices Program. Join NACCHO and Hennepin County Public Health to learn about this program and how you can use it in your jurisdiction.

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Please see our HealthMeet® Events page for a full calendar of all our upcoming HealthMeet® events at: