The new report from National Core Indicators is available to review. Here is a link –

National Core Indicators (NCI) began in 1997 as a collaborative effort between the National Association of State Directors of Developmental Disabilities Services (NASDDDS) and the Human Services Research Institute (HSRI). The goal of the program was to encourage and support NASDDDS member agencies to develop a standard set of performance measures that could be used by states to manage quality and across states for making comparisons and setting benchmarks. Fifteen states initially stepped forward to work on the Core Indicators Project, as it was originally known, and pooled their resources to develop valid and reliable data collection protocols. Over time, NCI has become an integral component of over half the states’ quality management systems and aligns with basic requirements for assuring quality in HCBS Waivers. NCI states and project partners continue to work toward the vision of utilizing NCI data not only to improve practice at the state level but also to add knowledge to the field, to influence state and national policy, and to inform strategic planning initiatives for NASDDDS.

We are always most concerned about providing choice and self-direction. The following statistics indicate we still have a long way to go in reaching this objective.

Choice and Decision-Making

Many respondents reported that they did not have input in major life decisions such as where and with whom they live and where they go during the day. As illustrated in Figure 22, only 50% chose their home, and 45% chose their roommates. Though 80% had input into where they work, only 60% had input into where they go during the day (their non-work day activity). Furthermore, just 60% had input into choosing their work staff and 58% their day activity staff. Sixty-four percent (64%) chose their home staff, and 41% percent of persons surveyed did not choose his/her case manager.